Rep. Engel Honored for Passage of 2014 MD CARE Act

Rep. Engel Honored for Passage of 2014 MD CARE Act

Washington, D.C. – Congressman Eliot Engel, a senior member of the House Energy and Commerce Health subcommittee, was honored by the Foundation to Eradicate Duchenne at the organization’s 15th annual Dining Away Duchenne event in Washington for his work in passing the 2014 MD CARE Act. Engel coauthored the bipartisan bill, which reauthorized the original MD CARE Act, with Congressman Michael Burgess (TX-26) and worked diligently to shepherd the legislation through Congress.

“As a direct result of the MD CARE Act, the lifespan of the average American living with Duchenne Muscular Dystrophy—the most common form of muscular dystrophy in children—has increased by a full 10 years,” Engel said. “The 2014 reauthorization bill I coauthored with Congressman Burgess improved the original MD CARE Act to reflect the latest research, enabled the NIH to expand and intensify programs related to various forms of Muscular Dystrophy, improved data collection, and increased awareness of treatment options among medical professionals.

“Our support at the federal level is vitally important to this cause, and with partners like the Foundation to Eradicate Duchenne, it is my hope that someday soon we will be able to look back and say we’ve defeated this terrible affliction. I thank the Foundation for this incredible honor and look forward to continuing our work together.”

Muscular Dystrophy is not a single disease, but an overarching term for a spectrum of genetic disorders resulting in progressive muscle weakness and degeneration. Hundreds of thousands of children and adults currently suffer from various forms of Muscular Dystrophy in the United States.